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Females Who Bleed: WGPPM

This page uses "women, girls, and people who have or had the potential to menstruate" or “WGPPM” to be inclusive of those who were assigned female at birth, as well as people who currently identify as women or girls. The term emphasizes the "potential," recognizing that not all individuals will experience or may have experienced menstruation. 

 

The aim of this page is to provide information and support to all WGPPM living with a bleeding disorder to help validate their unique experiences and build their knowledge. 

You are not alone, if you are experiencing complications and need immediate support, reach out at mail@thbdf.org or call us at 615-900-1486.

Bleeding Disorders in WGPPM

Women, girls, and people who have or had the potential to menstruate (WGPPM) have different information needs when it comes to managing a bleeding disorder. Understanding how bleeding disorders affect WGPPM is important in the journey to getting a diagnosis, setting priorities, learning about the potential for complications, and advocating for themselves in the healthcare setting. 

  

The following resources are tailored to the individual needs of WGPPM, which deal with more than just heavy menstrual bleeding and are different from others in the bleeding disorders community.

HealthyWomen 

Bleeding Disorders in Girls and Women 

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World Federation of Hemophilia 

Women and Girls with Hemophilia  

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FAIR Time for Women Coalition

Females* Are Important to be Recognized with Bleeding Disorders

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*Women, girls, and those assigned female at birth

Clue App 

Everything You Need to Know About Bleeding Disorders by Angela Weyland, MD.

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Her Hemophilia

Pfizer dedicated resources

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For additional resources and support, connect with a Patient Affairs Liaison here

National Bleeding Disorders Foundation

I Didn’t Know I Had a Bleeding Disorder by Anne Mette Christiensen 

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The Hemophilia Foundation of Michigan

National Conference for Women and Teens with Hemophilia

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Worksheets / Tools / Trackers for WGPPM 

Worksheets can be useful for WGPPM living with bleeding disorders. These interactive tools can help in a variety of ways, including in assessing risk, tracking symptoms, managing treatments and therapies, setting goals and priorities, and improving communication with healthcare teams. 

Use the following worksheets, tools, and trackers to help manage the challenges that WGPPM may encounter while living with a bleeding disorder.

National Bleeding Disorders Foundation

Healthcare Diary

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Hemophilia Federation of America 

Menstruation Tracking 

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National Bleeding Disorders Foundation

How to Prepare for a Doctor Visit

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National Bleeding Disorders Foundation

Risk Assessment Interactive Tool

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Tween / Teen / Adolescent WGPPM 

Puberty and menstruation come with special information needs for WGPPM who live with bleeding disorders. For some WGPPM, having heavy menstrual bleeding may be one of the first signs of a bleeding disorder. Being aware of how puberty affects WGPPM is important in being aware of the potential for complications and in improving quality of life. 

 

For those both newly diagnosed and those seeking to learn more, these resources will be helpful in informing and guiding WGPPM as they navigate a bleeding disorder. 

National Bleeding Disorders Foundation

Time to Talk Puberty: A Guide for Girls with Bleeding Disorders 

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CHES Foundation

Ladybugs Program

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CORE2ED

Raising Awareness of Heavy Menstrual Bleeding (Video)

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CORE2ED

Preparing Girls with a Bleeding Disorder for Menarche (Video)

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Adult WGPPM 

Adult WGPPM with bleeding disorders will want to understand how their reproductive health is affected. Information about sexual health, pregnancy, and menopause will be helpful in learning how to manage a bleeding disorder throughout a lifetime. 

 

WGPPM can use the following resources to learn more about how adult life stages are affected by a bleeding disorder, how to advocate for themselves with healthcare providers, and ways to improve their quality of life. 

National Bleeding Disorders Foundation

Sex and Bleeding Disorders

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Hemophilia of Georgia

Managing Your Bleeding Disorder – Before, During, and After Pregnancy 

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HemAware

Transitioning Through Menopause

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Resources in Spanish/Recursos en español

As bleeding disorders are being increasingly recognized in WGPPM, there’s a greater need for information in Spanish. The following links include information in Spanish language for WGPPM. 

A medida que los trastornos hemorrágicos se reconocen cada vez más en mujeres, niñas y personas que tienen o tuvieron la posibilidad de menstruar, existe una mayor necesidad de información en español. Los siguientes enlaces incluyen información en español para ellas.

National Bleeding Disorders Foundation

Cuadro de Ciclo Menstrual y Sistema de Puntuación 

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National Bleeding Disorders Foundation

Preparación Para la Visita Médica 

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National Bleeding Disorders Foundation

Registro de Pruebas de Laboratorio 

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National Bleeding Disorders Foundation

Quiero Saber 

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National Bleeding Disorders Foundation

Diario de Atención Médica 

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This page was developed in collaboration with Pfizer.

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