Supporting Families & Individuals

 Programs

August 14th

Pitchin' for Caleb Cornhole Tournament

Centennial Park

Crossville, TN

August 27th - 29th

Annual Meeting

Embassy Suites in Murfreesboro

November 6, 2021

21st Royal Gala

City Winery in Nashville

Calendar of Events

Educational

Virtual Programs

 

August 10th @ 6:30pm CST

From Clinic To Kitchen Table

Sponsored by Sanofi Genzyme

Speaker:  Shawana Darnell

October 26th @ 6:30pm CST

Parenting with Chronic Conditions

Sponsored by Sanofi Genzyme

Speaker:  Shawana Darnell

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About Bleeding Disorders

A bleeding disorder is a genetic blood clotting deficiency caused by the absence or inactivity of an essential blood clotting protein, or "factor."  This deficiency causes the body to form unstable blood clots that allow bleeding to continue longer than normal

A person with a bleeding disorder can experience frequent and often spontaneous episodes of prolonged bleeding.  The most severe cases can have extensive bleeding into joints, muscles, and vital organs, resulting in life-threatening emergencies and crippling long-term complications.  

Hemophilia and related bleeding disorders, such as von Willebrand disease, are genetically inherited.  However, one in three diagnosed cases of hemophilia results from a spontaneous genetic mutation where there is no family history of abnormal bleeding.