Supporting Families & Individuals
Calendar of Events
October 29 @ 6:30pm CST
Parenting with a Chronic Condition
Presented by Nikita Lyons-Murry
Sponsored by Sanofi Genzyme
November 5 @ 6:30pm CST
Esperoct for Hemo A Patients
Sponsored by Novo Nordisk
November 10 @ 6:30pm CST
The Power of Empowerment
Presented by Nikita Lyons-Murry
Sponsored by Sanofi Genzyme
November 17 @ 6:00pm CST
Planning Ahead: Aging with Hemophilia
Presented by Jeff McFall
Sponsored by Pfizer
We have been closely monitoring the situation regarding the Coronavirus (COVID-19) outbreak. Because of the CDC recommendations of canceling or postponing events of 10 people or larger, we have decided to postpone our Blazin' for Bleeders event that was scheduled for April 18th and our 50th Annual Meeting. Please see the calendar of events below for new dates. We will continue to communicate with you through email, social media and our website at www.thbdf.org.
We appreciate your understanding and will keep you updated with future announcements. Feel free to call with any questions or concerns.
Thank you,
THBDF Staff and Board Members
About Bleeding Disorders
A bleeding disorder is a genetic blood clotting deficiency caused by the absence or inactivity of an essential blood clotting protein, or "factor." This deficiency causes the body to form unstable blood clots that allow bleeding to continue longer than normal
A person with a bleeding disorder can experience frequent and often spontaneous episodes of prolonged bleeding. The most severe cases can have extensive bleeding into joints, muscles, and vital organs, resulting in life-threatening emergencies and crippling long-term complications.
Hemophilia and related bleeding disorders, such as von Willebrand disease, are genetically inherited. However, one in three diagnosed cases of hemophilia results from a spontaneous genetic mutation where there is no family history of abnormal bleeding.
