This year we will not be having a Day on the Hill at the Nashville capitol due to COVID-19 but, we will be having a virtual Week on the Hill. The advocacy committee will be working to come up with a virtual way where we will meet with legislators through zoom meetings during the week. Being virtual we will be able to have members from all over the state to join us!! We will have training through HFA on March 8th. Register now for this event!!
We would also like for you to send in photos wearing red ties to show your support for Bleeding Disorder Awareness Month for March. If you have a story you would like to share we are also accepting 2 to 3 minutes videos telling about your bleeding disorder, please let Robby Bond know. We will be putting together a short video to send out to the legislators to review before our Week on the Hill. Please send these pictures and videos to
National Hemophilia Foundation
NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to them. In 2020, Washington Days had more than 450 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and access to skilled nursing facilities (SNFs). The issues and priorities for 2021 Washington Days will be announced later this year.
Please note that Washington Days 2021 will be a virtual experience. Washington Days programming will take place during the dates of March 1-5. More programming details will be announced soon.
Preparatory webinars were hosted for the 2020 event. Similar webinars will be planned for February 2021.
A final agenda for the 2021 events will be released closer to the conference.