This year we will not be having a Day on the Hill at the Nashville capitol due to COVID-19 but, we will be having a virtual Week on the Hill. The advocacy committee will be working to come up with a virtual way where we will meet with legislators through zoom meetings during the week. Being virtual we will be able to have members from all over the state to join us!! We will have training through HFA on March 8th. Please be sure to check your email or our website at for more information and to register for this event.
We would also like for you to send in photos wearing red ties to show your support for Bleeding Disorder Awareness Month for March. If you have a story you would like to share we are also accepting 2 to 3 minutes videos telling about your bleeding disorder, please let Robby Bond know. We will be putting together a short video to send out to the legislators to review before our Week on the Hill. Please send these pictures and videos to
National Hemophilia Foundation
Washington Days
NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to them. In 2020, Washington Days had more than 450 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and access to skilled nursing facilities (SNFs). The issues and priorities for 2021 Washington Days will be announced later this year.
Please note that Washington Days 2021 will be a virtual experience. Washington Days programming will take place during the dates of March 1-5. More programming details will be announced soon.
Preparatory webinars were hosted for the 2020 event. Similar webinars will be planned for February 2021.
A final agenda for the 2021 events will be released closer to the conference.
Urgent Action Needed
The Federal Centers for Medicaid and Medicare Services (CMS) have approved Tennessee's proposal to convert TennCare funding to a block grant.
This proposal is nothing but a risky experiment that fails to protect the needs of Tennessee's residents. One in 5 Tennesseans rely on TennCare for healthcare during the COVID pandemic, including our most vulnerable children and elderly nursing home residents. Block grants were a bad idea to begin with, and they are a worse idea now.
The block grant must still receive final approval from state lawmakers before it can be implemented. Governor Lee intends to present a joint resolution on the plan for the General Assembly's consideration this week.
Please send an email to Governor Lee and your State legislator to urge them to reject Block Grants.
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