People
with bleeding disorders are confronted with many
physical, medical, emotional and psychological
challenges. How well they meet these challenges
depends on a number of things, including the severity
of the illness, the quality of medical care, the
ability to pay for treatment, and the support
of family, friends and the community.
Because there is no cure, people with hemophilia
require lifelong treatment requiring episodic
infusions of factor concentrate. Treatment costs
can exceed $150,000 annually, not including costs
associated with the complications of HIV or hepatitis.
Von Willebrand disease is typically a milder disorder
which can often be treated with a special nasal
spray. More severe cases require infusions of
clotting factor.
Tennessee Hemophilia & Bleeding Disorders Foundation
203 Jefferson
Street
Smyrna, TN 37167
(615) 220-4868 - Phone 888-703-3269 - Toll free
(615) 220-4889 - Fax mail@thbdf.org